Virtual HTA Workshop to Empower Rare Disease Advocacy

Challenge

A global biopharma company specializing in rare diseases faced the challenge of equipping patient advocates with the knowledge and skills to actively engage in Health Technology Assessment (HTA) processes. The goal was to deliver a virtual training program that would resonate with advocates across geographies, empowering them to make meaningful contributions to HTA discussions. The complexity lay in ensuring the training was comprehensive, interactive, and adaptable to regional differences while addressing the diverse needs of the participants.

Approach

Tailored Programme Design

SWII.CH Health partnered with the client to create a bespoke virtual HTA workshop. Key aspects included:

Needs Assessment: Pre-workshop surveys were conducted to identify knowledge gaps and align training with participant expectations.
Content Development: Interactive modules focused on HTA fundamentals, advocacy strategies, and effective communication skills.
Expert Faculty: Leading HTA specialists, seasoned patient advocates, and policymakers were engaged to provide diverse and actionable insights.

Interactive Virtual Format

To maximize engagement and impact, SWII.CH Health implemented innovative virtual learning strategies:

Interactive Tools: Real-time polls, breakout rooms, and Q&A sessions fostered dynamic participation.
Case Studies: Real-world HTA examples were integrated to provide context and practical application.
Resource Library: Participants received access to digital templates, toolkits, and supplementary materials for continued learning.

Global Accessibility

The workshop was designed with inclusivity and accessibility at its core:

Localized Content: Training materials were adapted to reflect regional HTA processes and priorities.
Flexible Scheduling: Multiple sessions accommodated participants across different time zones.
Language Support: Translation and closed-captioning features ensured full inclusivity.

Solution

The virtual HTA workshop delivered measurable outcomes that addressed the client’s objectives:

Knowledge and Confidence Growth:
- Pre/Post Assessments: Participants demonstrated a 45% increase in knowledge scores, reflecting a significant improvement in their understanding of HTA processes.
- Feedback Highlights: Over 90% of participants reported increased confidence in advocating within HTA frameworks.
Advocacy Readiness:
- Advocates gained actionable skills, such as preparing impactful patient submissions and effectively engaging with HTA decision-makers.
Client Impact:
- Strengthened the client’s reputation as a trusted partner in rare disease advocacy.
- Enhanced collaboration between the company, patient groups, and policymakers, fostering alignment on HTA priorities.

Client Testimonial

"The virtual HTA workshop exceeded our expectations. SWII.CH Health’s ability to tailor the program to our advocates’ needs while delivering it in a highly engaging and accessible format was instrumental in its success. This initiative has empowered our advocacy partners to make a real impact in HTA discussions."

Key Takeaways

This case study highlights the power of a well-designed, virtual training program to drive advocacy impact in HTA processes. By empowering patient advocates with the knowledge and tools they need, biopharma companies can enhance their reputation, foster alignment with stakeholders, and amplify the voice of patient communities in critical decision-making forums. Whether you aim to bolster advocacy partnerships or strengthen your HTA strategy, SWII.CH Health offers innovative solutions tailored to your needs.

Contact SWII.CH Health today to explore how we can help your organization succeed in rare disease advocacy.